Registry Data Manager
Salary FTE £39,140 per year plus £3,000 London Weighting or £450 home allowance per year
Hours Full time 35 Hours per week or Part time 28 hours per week (Salary and London Weighting will be pro-rata for part time hours)
Flexible location of London office or home based Research and Healthcare Data Directorate Hours of work flexible - Full time or Part time
Fixed Term Contract for 12 months
This is an exciting opportunity for a Data Manager to join the internationally recognised UK Cystic Fibrosis Registry team.
The UK Cystic Fibrosis Registry is a database of consenting people with cystic fibrosis across the UK collecting demographic, clinical care, and health outcomes data from clinical teams in specialist centres. The Registry is a world-leading resource, the data from which is used to facilitate research, clinical trials, real-world evidence studies and quality improvement projects for the benefit of people with cystic fibrosis.
We are looking for someone with demonstrable experience of working with large observational data sets who can support the Registry with efficient data management and reporting processes. You will have a passion for working with healthcare data and the use of data to improve health outcomes.
With excellent communication skills, you will be able to communicate your work clearly and appropriately for a wide range of audiences and be able to deliver to agreed timelines.
You will join a busy, dynamic, collaborative team and work with colleagues and stakeholders both nationally and internationally. You will be passionate about supporting the Cystic Fibrosis Trust and uniting with us to make sure that everyone can live without the limits of cystic fibrosis.
You can find out more about what we do here www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry
Please note:
This is a fixed term contract for 12 months to cover maternity leave.
This role is subject to a satisfactory DBS check.
This is a UK based role and offers a flexible location; however, if you are London office-based, a minimum of 40% working hours per week in the office will be required and if you are home-based, travel to the London office will be required in line with business needs.
You will need to have the Right to Work in the UK before starting work with us and we will check this. In addition, we do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for any of our roles.
Our benefits
We offer a range of benefits including flexible working, 30 days annual leave plus recognised bank holidays (pro-rata for part time staff), contributory pension scheme, healthcare cash plan covering dental, optical, 24/7 GP service, employee assistance programme and opportunities for learning and development.
Closing date and interview date
Closing date for completed applications is 23:59 on 2 March 2026
Interviews expected 12 March 2026
We reserve the right to bring forward or extend the closing date if necessary. Therefore, if you are interested in this role, please submit your application as early as possible.
How to apply
Before applying, please ensure you read the job description and person specification for more information about the role.
Applications should be made through our recruitment portal Hireful and to apply, please select ‘Apply Now’.
If you would like to discuss the role before applying, please contact recruitment@cysticfibrosis.org.uk
Our commitment to an inclusive workplace
Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with different backgrounds, experiences and perspectives; particularly people who have cystic fibrosis, people who identify as being from an ethnic minority group, as LGBTQ+ and people with disabilities.
It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.
No media or agencies please.
This is a UK-based role, candidates must be currently based in the UK and have the right to work in the UK.
